Good Friday

The wind has blown itself out it seems looking from the window out into the front garden.  I don't know how cold it is, I have lit the log fire to keep my feet warm and help stop the drafts that come down the chimney and under the doors.

It's good Friday and but what I don't understand is why Easter gets moved so much, why can it be late March one year then late April the next.  I remember being taught about it but still surely the church could come together and pick a date that could be near static like May Day!

I had writers block on Wednesday but Thursday afternoon another chapter raced across the screen, I wonder if I am putting myself under too much pressure.  It would be good to have the second book ready for kindle as I get the first one printed but that is a tight deadline.

I had a lie in this morning, well till 8.30 and my stomach is certainly let me know the bile sat there for too long, I truly wish I could have had my stomach put back in place.  The thought of having chemo is in the back of my mind, to think once it starts working out of the system my bile is going to bring it back up into the stomach and throat before I finally dispose of the stuff.  Not a nice thought really, because of the toxins within the chemicals it will make the bile that much more painful.

I know the last thing I should be thinking of is chemo, I am still in the stable state of meso but it is a worry that stays in my thoughts.

I had my last aromatherapy yesterday for quite a few weeks, my therapist and friend is having her hip replaced today.  I hope it goes well, although she isn't being knocked out.  I don't think I could stand it watching someone breaking a joint in my body and then forcing a ceramic replacement in.  I do hope she manages to drop off to sleep with the help of some sedation.

I read that another person was diagnosed recently and once again told that chemo would only give him 4 months of extra time and wasn't worth doing.  Come on doctors no one knows for sure how long chemo gives any certain person.  If these oncologists took the time to get involved with the charities that understand chemo they might find out that people with meso react differently.  It makes me wonder if we have come any further forward in the last 10 years. 

Our hols aren't far away now, and as much as I can't wait to get into some sun, well hopefully some sun, I just can't be bothered either.  I feel down, just can't seem to pull myself up from whatever it is that is making me feel this way.  My aches and pains aren't any worse, although my 3rd boob has been playing up a little.  But surely this can't be affecting my mental state of mind, I've put up with a lot more pain than I have right now.   I think to add to my list of meso I will add SAD, am sure that's the problem.

Well that's it for me today, I hope you all enjoy Easter and if out searching for those eggs, find them. 

Nice Gesture

Not having a publisher to help push the sales along it was really nice to read an article about my book and Chris Knighton's charity on an American Website.

Please have a look here  to read the comments, pretty nice to when even Chris gave a short interview

What better person could we have as an ambassador than Jan, a true mesothelioma survivor, and indeed it is us at MKMRF who are humbled and honoured to have her on board,” said Chris on naming Jan ambassador.

Read more: http://www.mesotheliomahelp.net/blog/2013/03/mesothelioma-survivor-jan-egerton-pens-book-to-raise-research-funds#ixzz2Oj9Sb4T1

I have a couple of mistakes so spent yesterday trying to correct them only to find that I can't reload the book but have to down load and amend.  I had changed my own copy and reformatted the entire document so all those errors I had found originally I have no record of.  I had nothing to compare it to that would make life easy, re-formatting made the new compare a difficult tool to use instead of an easy one for words.

Enjoy the downfall of snow, after getting the heating back up and running on Monday, being an old property it took till late yesterday to start warming up.  Looks like we are back in for a cold spell but I need to go in the office, would rather hibernate with my log fire!

I'm Cold.....

Of all the times, and as usual when the weather is at it's worst something happens to our heating, this time though its down to us, we didn't check the gas oil!

 

I am freezing, the electric fire I bought for the kitchen because the 2 radiators in there aren't powerful enough to keep the room warm,( in fact one doesn't even heat up!) has died a death.  The electric fire in the lounge is loosing the will to live, the cold air is whistling down the back of it and blowing more cold than warm.

 

We have the coal fire lit in the office, thankfully we had some coal brought down and am I pleased but hubby doesn't understand that once I get cold no matter how many layers I put on I don't warm up.  Changing from one room to the other makes me feel worse.  You have to pee after all!  We only have two rooms with any heating in, the lounge and the office.  I am thinking of packing my things and going to stay at my mam's empty house, although I think I would spend the night in tears if I did.

 

I am dreading going to bed, the wind is whistling through the walls up there!, by you certainly realise how poor insulation is when you have no heating and its windy outside.

 

What makes it worse is hubby is still in a short sleeve shirt walking around, he doesn't feel the cold, to be honest I never use to until I took ill with meso, now its a major issue for me.  It sets my bones aching and my meso seems to come to life.  I guess because I huddle into myself.

 

The dogs have had their runs out, I feel like I have just looked at a computer screen all weekend, the weather hasn't been kind to any of us.  This time last year it was at least 10 degrees warmer, the dogs don't seem to mind it, in fact Bear keeps eating the hard snow that is scattered around the garden.

 

Am working my way through a few typo errors in The DreamWeaver's Choice, to be honest I had forgotten quite a bit of the story so its nice to refresh my memory, especially as I have written quite a lot for the next one.  Some things in the first book obviously carry through into the next one.

 

I understand that Mavis received an award for her work with awareness from the USA organisation ADAO, well done Mrs Nye, spreading the word is important, if we can help stop someone today from being involved with asbestos it could save their life.

 

I was wondering the other day if asbestos that has been disturbed is why it is more dangerous than when our parents worked in it.  People today are being diagnosed a lot sooner and younger, no longer is it a man in his 70's, people as young as 20 are diagnosed, ok only a few, but still it is far too young.  Let us hope that asbestos will be banned in every country and that we don't just send it off to Asia for them to dispose of it and cause a major outbreak there in the future.

 

Well my fingers are frozen so I will call it a night, I hope that where ever you are you have warmth, remember to check your gas oil if you survive on it!